Reply To: GBS -Eyes Closed = Possum or Problem?
Hi D.U. – Yes, he was not playing possum. His eyes just may have been extremely sensitive to light ! He is able to communicate with either a yes/no head movement or 1 or 2 fingers up for yes/no. Speech therapy is improving with a Speaking Valve being installed for up to 3 hours a day. Hopefully with improved “swollowing”, he can have a successful 2nd “3-day blue-dye test’ in October so the Tracheal Tube can be removed and he can then be moved to a more intensive PT location. The situation now is that PT has completely stopped working with him because he “hasn’t improved according to their guidelines”. Some of the readings I have come across indicate GBS patient improvement/recovery occurs between 6-12 months and maybe up to 2 years. Since my friend’s bout with GBS occurred in March 2012 but not really diagnosed until April 2012, he should be in the critical recovery period now! We’re hoping for a significant change to occur soon.