Reply To: GBS but not typical onset

January 25, 2013 at 2:03 pm

Thank you for the kind words. It’s interesting, it was one of my neurologists that called my situation non typical. I think what he meant was that he said they don’t do plasmapheresis often in their office for many GBS patients, usually they see them in the hospital. My neurologist had a suspicion from the beginning that I might actually have CIDP because of the slower progression of my problems. Sure enough even though I initially responded to the plasmapheresis a few weeks later I started getting worse. So he now diagnosed me with CIDP and I have started IVig treatments. I’m also going to  physical therapy now, been fitted for ankle orthotics, and I have to use a walker now instead of a cane. But I’m trying as best I can to stay positive.