Reply To: Exacerbation – scared

If it is a papalodema, maybe that is what is causing the polyclonal gammopathy, a tumor? Did the doc suggest that? He is the only one that has given you some concrete answers. Perhaps if it is a papalodema and it is removed, the symptoms will stop. When we were told of the papalodema dx for my other son, I started researching and honestly it seemed like a better option than the cidp or ms. I think they go through the nasal cavity and remove the tumor or I think it can even be shrunk at some specialized institutions, I think oneis in Illinois. For once God was going easy on us and we just had to remove the antibiotic and all was fine. When will you get more info from the doc? Keep us posted. Wasn’t someone else on the site being tested for cancers etc. as the cause of their cidp symptoms?