Reply To: Exacerbation – scared

June 12, 2012 at 9:43 pm

Is it a papalodema or pseudo papalodema? Was optic neuritis confirmed? My other son had both of those. First neuro opthamologist left out the word pseudo, so we thought he had a tumor or ms. Second one and third said pseudo, which means it appears to be a tumor but is “fake” True optic neuritis (not caused by several drugs, in our case minocyclene, no one even made the connection, they just assumed ms or lupus) is usually indicative of ms or a tumor. In fact minocyclene and other drugs actually cause lupus/ms like symptoms, optic neuritis and papalodema (pseudo) Once we were off of the minocyclene and his ANA and mri was ok, we had our answer, it was the antibiotic. Is ms or lupus a possibility? If so, ms and lupus both use ivig for treatments, that could explain why you do have a response to it.