Reply To: Exacerbation – scared

Anonymous
June 8, 2012 at 6:20 pm

Go see another neurologist as a consult. This way he isn’t your doctor…yet. Feel him out. Ask front desk receptionist how many CIDP patients he has had before you go. Get a copy of your medical records and take them with you. Your regular neuro doesn’t have to know you had a consult and if he does it was just another opinion. Have a girlfriend go with you to the appointment. Read all you can here and we will cyber help you along the way. You deserve the necessary infusions to keep you going as full time mom, bread winner, house keeper and everything else. You need to “rock the boat” because you need to for your family and you.

I have trouble swallowing, weird eye sight that store florescent lights make worse, walk a tad sideways and still knock my mouth with a drinking glass (I use straws for drinking..try it).

Stay out of the heat and hot showers. It makes CIDP kick in more.
Stay cool and with your “ya’ll” I’d say lots of Ice Tea, girl.

LimeKat