Reply To: Exacerbation – scared

June 8, 2012 at 12:00 pm

Yes, Emily had pain behind her eye. It’s a sign of inflammation. Her eyes would also get dry. You really should see an eye dr too! She did have swallowing issues & GI issues & bladder control issues.

You need to remember that your dr works for you! Your insurance (that you work your butt off to have) pays him. That means you need to be able to say “this is what I think”, or “hey…can we maybe try this?”, or at the very least “I haven’t been feeling great”.

You need to take control of your health care. You have to be your own advocate & if you aren’t doing well…you need to speak up.

If this was one of your kids what would you do? You would fight tooth & nail to get them the treatments they need. You need to apply that to yourself because your health affects your kids.