Reply To: Exacerbation – scared

Anonymous
June 6, 2012 at 3:56 am

For some having IVIG more often makes symptoms less. I have IVIG every week and it works for me. I also have my infusion at home making it easier for me. Some home health infusion nurses can come on the weekend or after work so you may need to check into this option. See if your health insurance will pay for this. Think of having infusions as your investment in you, your health and your quality of life.
By reading about IVIV frequency you can see increasing it can be beneficial and you may need to tell your prescribing doctor about it too.
I hope the increased schedule is make you feel better soon.
CIDP is an odd disease and tends to morph without rhyme or reason.