Reply To: Exacerbation โ€“ scared

June 5, 2012 at 2:34 am

Dick S- haha, I also like your fire hydrant comparison!! I hear ya there! ๐Ÿ™‚ As far as the insomnia goes – I cant even nap if I want to anymore, since all of this started (i work crazy shifts, so a nap would be great at times) but I take lyrica before bed and don’t like taking it in the daytime as it makes me feel funny (don’t wanna work or drive kids after taking it) and the limbs “asleep” sensation is CRAZY when I don’t have the lyrica in my system.. during an exacerbation its even more so – ick! I fall asleep no problem, but within minutes i’m awake shaking my limbs and just annoyed!
Shellbones- You know as much as I don’t want to be on immunosuprresants you are right.. if it meant I had fewer relapses, that would be worth it, as you can treat most infections with antibiotics if needed, but things can go scarily wrong with relapses that might not be fixable… defintely makes it look more appealing and less scarey- thank you for that perspective! Hope you don’t have to get on antibiotics this time – ugh germs… not fond of them one bit!