Reply To: Everyday I wake up..

January 17, 2013 at 10:12 pm

You are very fortunate, because it could have been much worse. GBS is considered a medical emergency, and those afflicted with it must be closely monitored for signs of breathing impairment until they are well into the recovery phase. From 1990 to 1993 three medical books were published on the subject of GBS. I can understand that your primary care physician would have been unfamiliar with GBS, but he knew it was neurolgic by the absence of reflexes. The hospital, certainly, should have understood the seriousness of the disorder and should have had a neurologist on call for emergencies. I think, though, that it was due to ignorance, not betrayal. Insurance may have been a factor as well, unfortunately.

Cases like yours are the reason for the existence of GBS-CIDP Foundation International, which strives to increase awareness of these disorders so that they will be treated appropriately when they occur. Thank you for sharing your experience.