Reply To: Droopy Face!
Sorry bny , I forgot to write about the port. If the dx is for sure, then a port is the only way to go. Makes things much easier!! One stick and in, no worries about a blown vein, sure thing every time. While you are still in the stick mode, be sure to be hydrated, warm showers right before help, or warm compresses on the arm in the general area. Push ups used to work for us while we did not have port.
To be honest with you, we did not relax until year four, we are almost at year five. We had a dx of gbs by week 6 and firm cidp by 6 months. There are so many trial and errors and research and confusion and doubtfulness in choices and changes in symptoms, it was a constant rollercoaster. It took four years till we were relaxed. Just today I asked, do you think it is your cold? Or do you think your cidp is acting up. So don’t get too discouraged, everyone still has doubts!! It just takes time.