Reply To: Droopy Face!

Hi there- I wanted to chime in and let you know that I had issues with my cranial nerves when my CIDP was diagnosed and at relapses- I too had many atypical features which led me to the Mayo clinic for diagnostic confirmation. I did not experience a definite obvious droop but had bad facial numbness , difficulty chewing, swallowing weak cheek muscles and my voice was very thready and difficult to project. I also experienced some blurry/ double vision and had some weakness in my eye muscles. I do get facial fasciculations and have even had tongue fasciculations ( muscle twitches) that was truly one of the weirdest sensations I have ever had! That does not happen now that things are under better control. I think so many of us have had the ALS scare and truly only time and knowing as each year and month that passes and realizing that you will be ok will put that fear at ease.