Reply To: Doctors in Ohio

August 13, 2013 at 12:23 am

There certainly can be severe pain with GBS. Parry and Steinberg wrote:

“Pain is an integral part of the disease, but sometimes it is not given sufficient attention. … It is frequently underappreciated and undertreated by doctors, ….”

In my case, it was mainly leg pain. Even after getting off pain meds during recovery, I would experience severe pain if someone moved my legs the wrong way.

My advice is to get a copy of Parry and Steinberg and a neurologist who understands the disease.