Reply to Dawn’s

Hey, thanks a lot for responding! I am slowly figuring out that there are no definitive answers and each person has to be in control of their treatments. I believe my neurologist has done a great job but it is now up to me to yell and scream when I think things need to change. I hope your child is doing well with all that goes with this stinky disease. I am also starting to get over the shock of even having it. It has altered my life enough that I am really having to get my mind right to accept. Oh well, I guess there are worse things. Thanks again and have a great day! Paul