Reply To: CMV AND GBS

I got the loading dose 2gm/kg for over 2 years—but 12 weeks apart. when i switched to dr dycks regiman i got a lot less 0 .04 gm/kg but more often (weekly). i am going back for a loading dose thurs& fri she wrote the rx for 6 months of 2gm/kg (loading dose) every 6 weeks for 6 months.
I wonder if the reason you noticed such a drastic improvement with your first dose is because you had a rapid deteriation with your symptoms when you got them?? They came on quickly, where as if they came on very slowly and progressively then they might heal that same way??? IDK–just thinking out loud here.
with me it’s the slow and progressive AND good days and bad days so it makes it very difficult to tell when im better or worse. Sometimes it’s hard to tell if i feel weaker because the disease is progressing or if it’s because i felt better the day before and over did it??
back to the loading dose question–i think my drs original plan was to do the loading dose until i reached the desire response then back off to maintainance dose, then see if i could go without it. of coarse this was 2 1/2 years ago—–dont know how much longer im suppose to wait for that “desired response” ???? lol