Reply To: CMV AND GBS

Thank you!!!! Gosh hearing, well reading, you say that just helps calm my nerves!!! 🙂 I REALLY appreciate you responding to the last post as well!! I work around sick people.. I usually don’t get sick from them, but from co workers occassinally, but mostly from my kids! I feel like a hermit right now, I don’t want to take my kids to birthday parties or big public events for fear of them getting sick and me getting sick (they are 2 years and 11 months).
I wondered if me getting further away from my loading dose would make the maintenance doses less effective if it wears off before I get the next dose.. I got my 3 day loading dose decemeber 17th.. then felt my symptoms return about 16 days after that.. had 30g (I weigh around 125lbs).. 4 weeks after that (due to confusion on the infusion center/university scheduling.. and then 30g 3 weeks after that..and now 48g 3 weeks after that.. Each time I notice an obvious decline at around the 16 day mark or so.. however, last time it was around then I got fever on that day and it was a much more rapid decline…
My dr is trying to keep me off immunosuppressants and steroids due to their bad side effects…. I’m hoping not only will I notice improvement with this dose, but that it will last longer, hopefully to the 3 week mark till my next round.. Do some people have to get another loading dose sometimes or is once enough? Thanks again so much for your help.. I REALLY appreciate it!