Reply To: CIDP pain
February 3, 2013 at 4:28 pm
Thanks Kelly and GH! I really don’t like the idea of taking pain medicine either and hope that we can look into other ways of managing the pain first. After all this time, I thought I had finally figured out what my “new normal” is…silly me. 😉
Kelly – Thanks for the suggestion about changing my infusion schedule. I’ve been tracking my symptoms on a calendar since beginning IVIg and will organize my “data” better to share it with my doctor when I see him. Hopefully it will help support more frequent infusions. Thank your daughter, too, for sharing what she feels. I hope that she is doing well!