Reply To: CIDP pain

Thanks Kelly and GH!  I really don’t like the idea of taking pain medicine either and hope that we can look into other ways of managing the pain first.  After all this time, I thought I had finally figured out what my “new normal” is…silly me.  😉

Kelly – Thanks for the suggestion about changing my infusion schedule.  I’ve been tracking my symptoms on a calendar since beginning IVIg and will organize my “data” better to share it with my doctor when I see him.   Hopefully it will help support more frequent infusions.  Thank your daughter, too, for sharing what she feels.  I hope that she is doing well!