Reply To: CIDP friendly neurologist in Orlando

It has nothing to do with finances etc. Its about the competence of the doctors. The doctors want to disregard all of her tests from outside Florida and re diagnose her. If you have ever lived in Florida you will know what I mean. Incompetence is rife here, testing and re testing , its becoming a joke here.

I spoke to a few people from the GBS/CIDP Foundation International and they could not recommend a doctor in Orlando as they are not up to the task of dealing with GBS /CIDP , you will find very few doctors who have heard of it, in fact the only doctor i have come across in the 18 years since I had GBS was my optician !!!