Reply To: Central Pennsylvania Support Group

July 10, 2012 at 7:24 pm

The GBS/CIDP Foundation has a process for accepting appications for becoming a liaison. A candidate must first be evaluated and pass before being sent onto training for contact with patients and their families. The person that you have listed is not a trained liaison with the Foundation. It is not a condoned option to post names, phone numbers, and email addresses without the consent of the party for that publication on an open forum. Any patient or their family members may contact the Foundation office and we will be happy to direct them as best we can regarding their questions.