Reply To: cellcept/ cyclosporin/immunosuppressants questions

March 11, 2012 at 4:17 am

Do you go to Rochester Mayo shellbones ? I went there in june to see Dr Dyck for a second opinion and to get a definite diagnosis. The reason i ask is because that was the same quote i received from Dr Dyck when i brought up the SCT subject to him.
Thanks for the info on Imuran, i will check out some of those sites. There must be a lot more info and personal experiences on those sites since all of those diseases are much more common than cidp.
have you gained back all of your strength since starting the ivig and immunosuppressant regiman? how long did it take to see results from the imuran? did you have hair loss from the immunosuppressants–or is that just usually from the large doses used for cancer treatment?
thanks for sharing your experience–there is so much more info on this board than anyplace on the web for cidp.