Reply To: Autonomic Nervous System

I have GBS/CIDP/MFS. MFS seemed to mostly affect areas of my face: couldn’t close my right eye, couldn’t smile, slurred speech, swallowing problems, numbness on my face. Most of these problems have been resolved, but not 100% after 5 years.

I also had muscle weakness that affected my breathing and it took a good 6 months before most of that went away (still left with minor breathing weakness). I don’t know if this was MFS or GBS/CIDP related.

A couple months after the onset, I was diagnosed with Atrial fibrillation (AF) and had to be put on blood thinners (Warfarin/Coumadin). My Neuro thinks the MFS may have been involved with AF. I was on this treatment for about 18 months before the doctors felt it safe to stop the treatment and see if the AF was gone. I have been AF free for almost three years now.

In my case the MFS damage seems to have slowly been repaired, some things faster than others, but none of the affected functions are back to pre-MFS levels.