Reply To: Any experience with centers for excellence?

Good for you!  I think a second opinion is always a good idea…especially since IVIG didn’t work for you.  The centers for excellence are specifically trained to treat our rare condition/conditions.  Even if all you get is a confirmation that what you are receiving is the very best, I think it is a great idea….provided it wouldn’t cost a ton or exhaust you to go there.

Best of luck to you and way to go on your progress!