Reply To: 4 year old with CIDP – New to Forum seeking support

Anonymous
June 27, 2012 at 5:55 pm

His blood pressure was always normal until he got the GBS/CIDP. Even when he isn’t getting the infusions it is running high. The immuran does scare me and the Dr doesn’t seem to think its a problem. It will be one of the first things I ask the new dr, espically since he keeps uping his dosage. I agree with the IVIG every month he shouldn’t need Immuran. It is like pulling teeth with these Dr’s. I have to do all the research and then prove it to him. I know they are monitoring my son by doing monthly CBC’s because of the Immuran so hopefully nothing happens.