Reply To: 4 year old with CIDP – New to Forum seeking support

May 30, 2012 at 2:58 am

Chettri – You need to find a new dr ASAP. The key to treating CIDP is to catch it before symptoms show up. That way healing can happen. Every single time your son relapses more damage is done. He is not being allowed to heal.

IVIG has a full life of 42 days. If you are waiting 3 months between treatments his body has already burned through that IVIG.

I believe there is a Center of Excellence (a hospital the GBS/CIDP Foundation recognizes as a facility that can properly treat GBS/CIDP) in Texas. You need to contact the foundation ASAP to get that info & to get your son into another dr.