Reply To: 3rd IVIG not as effective?/relapse?

February 15, 2012 at 4:52 am

Here’s what I’m thinking…

I noticed a HUGE improvement with Emily right away. She went from barely being able to walk to running & jumping…in less than 24 hours after her 1st IVIG. I think you notice the first improvements more because you’ve been so weak for so long.

If you are noticing you are feeling weaker 15 days after your infusion then I would suggest trying to get the 30 grams but every 10 days. The trick is to get more IVIG before you start to notice any symptoms. The attack is already happening on your nerves when you notice the symptoms. If you can stop the attacks all together then your body can start to repair itself.

Honestly, I would tweak the dose & schedule before trying steroids.