Reply To: 3rd IVIG not as effective?/relapse?

February 12, 2012 at 3:33 am

Thanks Lori! interesting about the prednisone! I’m not sure if they would do that or a different immunosupressant first?? I’ll defintely be asking! I feel like the IVIG is working better today (10 days after)… Do hormones have any effect on CIDP that you have heard?? I have noticed there are certain times where my symptoms flare a bit (the overall weakness and the speech/swallowing esp)..
Also, interesting you mention weight loss! Have you had weight loss issues with all of this?? I lost 16lbs initially, in only a matter of weeks… i was STARVING all the time.. I told my husband I literally thought I was going to starve to death…. all I did was eat SOO many meals a day, in th middle of the night, protein drinks you name it and continued to loose! I also had hyperactive intestines during that time.. i guess malabsorption of some sort… Anyhow, with this last flare- the first symptom was a 2 lb weight loss and intestinal flare.. followed by exacerbation of neuro symptoms.. I have been gluten free ever since the onset of this whole thing just in case..

I also rarely have gotten sick, same thing my entire life I always seemed to be the one that never got the illnesses other people had.. but that has changed the past two years, with pregnancies etc..