Reply To: 3rd IVIG not as effective?/relapse?
hi—good to hear from you–I was wondering how you were doing. The good thing is you now know the ivig will work for you.
You had such a good and quick response to it. Now you just need to work on the frequency–see if you can get it BEFORE any relapse occurs. That’s great news that it worked that well for you 🙂 The PE procedure went fine, it’s a little more of a nuisance than ivig but not a huge deal. I have not noticed any significant improvement from it. I’m not really sure of this new forum, i dont think we can even send private messages–unless i just havent figured it out. I really miss the ability so search a certain topic and those posts would come up—I used that feature a lot. We should get each others e-mail in the event it goes down again. I had some peoples e-mails and numbers–but unfortunately the only place i had them stored was in my saved messages on the old forum, so lost them. glad your back on here–hope things continue to improve for you:)