Reply To: 3rd IVIG not as effective?/relapse?
THanks so much Shellbones! That’s interesting that illnesses can cause SUCH set backs!!! I also wonder if the fact that i’m getting further out from my loading dose is affecting my sytmpoms? My dr seems to listen now, and mentioned adjusting the dose or doing another treatment earlier very easily.. though at first I think they thought I was just a stressed out woroking mom, until tests started coming back abnormal.. It’s so strange.. my symptoms are bodywide.. with distal (hand) involvement and pretty bad shoulder and hip involvement.. all my muscles are so weak and shakey today My buttock muscles just flat out get so fatigued I can barely put one leg in front of the other.. it’s so odd!! Is that “normal” in this whole CIDP thing?