Reply To: 12 year old son with atypical GBS/CIDP

It is not unusual to change treatment from IvIg to plasma exchange. PE is a good treatment when IvIg is ineffective. I was switched to PE when I continued to decline after IvIg. I had nine PE treatments. Five is more or less conventional, but in my view more is better. I didn’t start to recover until about my sixth or seventh treatment.

The pattern of relapse cannot be predicted. I have had no relapse after getting through a very difficult period. Others have milder cases, but may struggle with relapse. It depends on the individual case and the particular treatment. Your neurologist must try to find the treatment plan that works best. It is not cut-and-dried.