Reply To: 12-year old son newly diagnosed

August 4, 2012 at 1:43 pm

Sorry I didn’t email you. The site was down for a few days. I will try to email you later today.

Real quick – my daughter had inflammation from her lower lumbar on down. The neuro said she “lit up like a Christmas tree” on the MRI. She also had cranial nerve inflammation – did your son have a brain MRI with contrast as well?

I can’t really help you with regards to PT. We never put Emily in it as she responded really quickly to the IVIG.