Reply To: 12-year old son newly diagnosed

July 30, 2012 at 3:10 pm

I re read my post and realized there was really no positive info in it. Just so you know, my son is totally functional now, beyond functional actually. He can run five miles, liftts weights (15 yrs now, 9 when this started) has huge biceps, almost a full 6 pack. Everything is normal with the exception of getting tired faster and increased pain at old damage areas when he gets the flu or something. We hope that this time he will be in remission. As I mentioned we go to the doc today to talk about weaning again Things do get better and believe it or not this will make him stronger in life in so many other ways…

About the hearing issue, check in archives for a member named sue or sue from cornwall or something. She is from Canada, she too had ear issues. I don’t remember anyone else on the site besides her and maybe “Jerimy” mentioning hearing loss. Sue did get her hearing back with steroids. What did they find on the c and t spine? Inflamation? Lessions? The most of our pain was centered around the spine as well. Let me know if you would like to talk.