November 3, 2006 at 11:31 pm

Hi Erin, My husband Bobs GBS onset sounds very much like your dad. Bob was 45(4 1/2 yrs ago)he was on a ventalator for 8 mths and in hospitals for 2 1/2 years. We feel Bob was kind of a miracle(and hopefully your dad will be)because today he is still left in a wheelchair and doesn’t have much use of his hands BUT he does work as a project manager he has no breathing, eating or general health problems.He has very little pain and doesn’t take any pain med’s, alot of people are left with a lot pain but maybe because the onset was so quick it is different. The Dr’s told us the same about the nerves and damage to the nerves. No one would know how bad he was just by looking at him. We go for supper and shows. We visit with friends and family. So I don’t know if this is good or bad news to you but Bob does get alot of enjoyment out of life. He lost alot of things, he loved to play hockey and golf and of course the freedom to get about but I think he would rather be here than not.(There was a time when he thought he would have liked to die but not now)We have 3 daughters and 5 grandaughters who we get alot of support from. Tell your Dad he will be fine and not to believe the Dr’s as they only tell you the worst. They told me (when Bob was in ICU) that I should make plans in case he didn’t get any better, thats when he couldn’t move anything or breath on his own!!I hope this a feel good email and don’t give up!!