My GBS came on within days, but it can take longer and one can have mild episodes before it really hits. I know someone with CIDP and it was much more insidious. If you read through our posts you will find that many of us suffer from “residuals.” Some, like myself, have more problems years after our initial attack. As for finding someone familiar with GBS…it is hard because it is rare. If you are uncertain about your diagnosis, you might want to travel to a large teaching hospital with a good neuro dept. Good luck and don’t hesitate to ask questions here.