Relapses? How do you know

June 29, 2009 at 6:08 pm

After dealing with CIDP since 1984, I can tell that I am having a relapse. Usually, I start having more difficulty doing physical things than when everything is relatively okay. My neuro said after so many years this is one of the best ways to tell if thiings are not going right. This is a doctor who I have been seeing now or more than 15 years. He also wants my input about any changes in my treatment plan. Back in March he asked if I would lke to try to stop the IVIG alltogether and also the prednisone. After talking with me we agreed to go from infusions every 3 weeks to every six weeks. I also told him I would try to stop the prednisone once the weather became nicer. I tried taking prednisone every other day for three weeks than stop. This did not seem to work. Was told to try again when I feel stronger, but should try every other day, then cut pill in half and take that for 3 weeks and then try to stop. Haven’t tried this yet.