Recovery 8 months out
Our daughter is well and able to pursue a full schedule. She’s playing soccer and softball now, and may be just now learning to walk/run/jump again the way she did last summer. Her feet still hurt whenever she’s on them, but she really did not like the gabapentin and would rather suffer the pain. It does still hurt sometimes even to walk just a block.
We have been advised that if the foot pain and change in her walk/run/jump are due to damage to the myelin sheath, we’ll just have to wait for it to get better. The docs have ruled out muscle and bone problems in her feet. Therefore, they feel that PT will not help — her muscles are OK, and her regular exercise will retone her muscles.
Her face recovered completely within a couple weeks of coming home.
We may consider an alternative for the foot pain — perhaps acupuncture or massage. We’ll check with her doctor first.
Re: the nurse’s comment to you — I remind myself that if my husband and I do not advocate on our child’s behalf, then who will?
I responded to your private message.
I wish you both good luck.