July 30, 2011 at 2:03 pm

The R works for me. Better than IVIG, Plasma, immuran. Still on a small amount of Prednisone.. Been working hard, and walked half a mile yesterday with the walker on wheels. A new record! But it is not a cure I think, so I am looking into the SCT as my next step. peace.


April 2, 2007 at 10:47 pm

Hi, Kevin is newly dx as well, and I have a HUGE binder with every report, insurance claim, bill, procedure, reaction to a procedure, flow rate, etc. you get the point. Bring it with you, fax any records to avoid repeat testing. I just read an article that a friend sent me and I plan on faxing it to our neuro prior to our appointment on April 17th as well as some questions that came up after reading the article. This way both the Dr. and myself have time to prepare and give thought. Bring everything you have the more informed the better informed as far as I am concearned! Good luck to you! Dawn