Re: rehab

Hi Mom 🙂
I noticed with my Fiance (he’s 35) that in the ICU and general hospital they were not quick to bring in physical therapists, and that really hurt him in the long run. Even if you have to do it, just move his legs a little, and have him pump his feet up and down. We were transferred to an Inpt rehab after about 3 weeks (Our case was not nearly as bad as your son’s, it only hit his thighs before we started plasmapheresis), but 2 days after we got into rehab the new PT found a blood clot in his thigh and we wasted a whole week in rehab to treat that, so it was basically a month before he was even able to get out of bed.
We were in Inpt rehab for about a month. They really did not push him there. It has been a big change since we have been home. His outpatient PT is very direct and pushes him hard. He sweats at therapy, (and complains of course). 🙂 But this is the only way he will get better.
Also, always be concious of how he feels regarding fatigue… it’s ok the push himself, but there’s a point where fatigue kicks in and that will make him go backwards in his therapy. We get a lot of therapy techs working out my Fiance under the direction of the therapists, but they don’t know the difference. Always be vigilant.
Good luck!!
Amy