rate of change in walking

July 28, 2008 at 7:54 am

Hi Kithlyara,

My opinion on the walking and what to expect if things don’t turn around. I have some input that help. First of All, After reading your posts so Far, It appears that you and I share very similar symptoms and diagnostic criteria, best I can tell. I was also told I have a mild case, although I don’t feel it is mild. My system suffered and degraded from June 07 through the end of Fed 08. At my worst, is sounds like where you are at now. I dreaded going up the steps, wobbly at night, rubbery legs, etc. I felt in Feb, that at the rate I was going down hill, it would be 2-5 months and I would be uanble to walk anymore. The changes were slow but got worse each day and noticeable as each week passed. Balance was bad. If I closed my eyes to wash my face and bent over, I would go flying back. At this point I was undiagnosed and was about to see the current neuro that I see now.

As you have probably read, It does not matter how strong you were before your illness, the situation can disable quickly. I read about bearman, a former football player now unable to go but an hour or two. I was at that level of deteriorations as well. Other factors like body weight play a big role in mobility, the severity of the attack from your system etc. Probably the most important thing is starting the treatments in the correct order to find the one that arrest the attack on your system. If you are waiting for the IVIG approval, staying on Prednisone until that comes in would probably be something I would want to do. Otherwise there is no way of knowing exactly what to expect.

Although I am currently not being treated, I was fortunate enough, that I was able to cause a bump in my system that got me back on my normal track and since have made huge improvement. this is allowing me time to have some final testing done so that I can start a treatment plan to prevent relapse. If that didn’t happen I don’t where I’d be today. Probably not very good. It is apparent that most people suffer too much until the doctors get the treatments going. It seems they need to see it with their own eyes that you are literally on your last leg before they act. Unreal. Your Doc seems a bit more proactive than most and that is Real Good. Good Luck!!