progress: good either its the ivig/pred/or just luck….

June 20, 2008 at 10:28 pm

Well, this is coming on the 4th week of taking the pulse steroids.. My local neuro/dr. assigned me another 3 day round (this time), of ivig, just in case the steroids are not working, that I finished up on this morning… It was coming up on 35 days inbetween and I haven’t had any symptoms returning.. In fact quite the opposite, I feel I have gotten quite a bit stronger since about 1 1/2 months ago, so am pretty happy bout that… Interestingly, I ran into a gentleman who also has cidp, who frequents this site (I won’t use his name unless he wishes to come forward).. This was my 1st encounter with another e.t. cidp! He looked pretty normal to me, and he was at the hospital getting ivig as well… I think our visit reinforces some of the issues I’ve had physically….i.e…I’m not the only one type thing…Anyway, I still can’t say for sure this methyl pred is helping or hurting.. My take from my local doc., is stick with the ivig only…, but I’m gonna stay the prednisone course and see if it can put this cidp back into full remission…Take care guys…deanop