Problem with ‘Sensory nerves’?

February 10, 2011 at 7:14 pm

Is that re-growing of those nerves is very, very slow! Just over 1/4″ a month? But there are soo many of them? Who knows where they regrow to? Especially in relation to what damages have been done.
Muscular? Well, IVIG usually does IMMEDIATELY affect good responses. For sensory tho? It takes months to show a response. That doc saying it’s not gonna happen could be off? By a bit? Mine has been mostly sensory, and I was lucky enuf to respond to it by the second round of infusions immensely. BUT, I’d not been as long from onset as your dear Norb.
I guess this is why we all seem to see several neuros before we GET our diagnosis, THEN? Finally get any good treatments!
Further…many neuro’s underdose and thus fulfill their own expectations of ‘it’s not working’.. If I were you? I’d contact the NIH to find someone who specializes in this area of research to confirm that your current neuro is on track. As best as possible.
Certainly, it can’t hurt to ASK? Maybe it could be an assertive nudge for your neuro to be more ‘agressive’ interms of treatments.
Hugs to Norb and to Kazza! You need all the help you can get!
PS? I’d mostly had sensory until over a year ago. Then I had some total muscular ‘malfunctions’! With disastrous results. So? One and all? Be careful out there!