September 17, 2007 at 12:22 pm

Hello Maria,
At least it’s good that part of it went well for you. I have severe CIDP, the other syndrome, and PT and exercise are VITAL to me so that I can rebuild as much muscle strength as possible. We need PT therapists who will research and learn about our syndromes and the best way is to learn the needs of the ones who have them. FATIGUE is a big issue for us and many of us do not have the endurance to do PT 2 or 3 times a week. For me, my therapist learned that I could benefit by 1 day a week. And another thing, I would like a PT therapist to understand that when your feet are extremely numb and you do not have normal feeling, you HAVE to look down at them. As far as I’m concerned, looking up will come later.

I would love to see a PT therapist on our forum to advise and motivate us. I need one.