prednisone hell

July 18, 2011 at 8:53 pm

Right now I have regained about 90% of my strength in my legs and hands and almost all the pain has receded. Wow, really pretty quick response!
Thanks for sharing your experiences. I’m in awe of the suffering that so many on this forum experience. If you don’t mind my asking, what is 90% in your case? Are you able to function without a cane or walker? I’m curious because my doc is considering prednisone for me since I haven’t responded to IVIG. But my symptoms are far less severe than yours and I am VERY reluctant to go that route.

Prednisone Hell,

July 14, 2011 at 5:30 pm

I emapathize and I am so glad I could “just say no ” to pred.
I was on it a few years back for other reasons and my wife and I agree it will only be used as a last resort!!
I was diagnosed w/ CIDP in late Feb 2011. Began IVIG treatment in March . Recently my Dr. had me go 6 weeks between treatments to see if my body ‘rebooted’… no such luck.
I went way backward and only now, one week from my next IVIG, do I feel close to where I was when I began backsliding. My wife is wonderful, but wants me to rest way more than I want. When I over-do she tells me I should have stopped sooner. I tell her I am working on the calibration for that ‘meter’, the one that tells me when to stop. 🙂
Any way sorry I digressed. (my buddy and I say, “oops! a bird flew by and I got distracted”).
I’ll be praying for your improvement. Know there are lots of us who ‘to some degree’ share your pain. We’re all rooting for you and your recovery. Best of Luck!!

Mike G.