October 18, 2006 at 11:34 pm

I was on 1,000 mg of steroids infused once a week for 21 months. The main side effect was weight gain (80#), but I also ended up needing cataract surgery on both eyes, & have much thinner bones. But this was a very high dosage, & without it, I would have needed to be in a nursing home. The steroids gave me just enough during this time to dress myself, feed myself, take my meds, & transfer from my power chair to the commode, to the bed, etc. My neuro told me that steroids are now the first course of treatment that he uses for CIDP.