you definitely have enough on your plate–having to watch your child suffer with this horrible disease….I thank god that it is myself and not one of my 3 children who have to deal with it. Thoughts are with you –and I hope your insurance company comes through for you. Lori

Hey I have been thinking about you ever since you posted your dilemna. My husband read your post and he never reads anything on here and it affected him. Our two year old has an autoimmune disorder or cidp or something. I understand your dilemna being a mother of two children. When I look at my daughter I wish I could make all this be happening to ME. She is so little to deal with all this pain. I don’t even know if she has numbness as she is too little to know. She complains of her feet and doesn’t really like to wear shoes and socks and doesn’t like a blanket near her feet at night. I can’t stand the thought of her feeling numbness and tingling. Hang in there!