I don’t post like I used to, but like Norb I have had a severe case of CIDP for almost 10 yr. now & I am as good as I am going to get. I live 15 miles from the largest ski resort in the Midwest & we had season tickets there for years. I could only dream of downhill or cross-country skiing again. Actually, I do picture myself skiing in my dreams. I also loved skating & playing tennis, have even thought of trying wheelchair tennis, but my arms aren’t that strong. At our condo in Florida I will be walking right by the brand new tennis courts on my way to the pool area & clubhouse, that still hurts even after all these years. I hope to buy a scooter to keep down there for the winter months, so I can at least go with my husband on his walks.
As far as success stories, remember that the majority with CIDP get pretty much back to normal with various combinations, & lead busy lives working, taking care of families, etc. There is really no reason for them to come here. For those of you looking for answers, when you get back to your old self, you will not feel the need to come here either. And I believe that is a good thing.
In reference to your comment that no one posts after you do, sometimes a thread has just run its course. In other words, by the time you respond to it, others have already said all there is to say on that subject. Most of us just read the posts & the responses, paying little attention to who has actually responded to the posts. I have read the forum every day for over 4 years now, but I only post if I can help someone out.
I had a severe case of CIDP & almost 5 years later, I still type with just two fingers. It does take me awhile to type a post. In all that time, I have never seen anyone angry about not getting help; sometimes it just takes a day or two. Also, most of us have never dealt with the prison system, thus, how can we help you out?
I wish you & your husband only the best, & I hope you continue to come here for help. It is truly a great group of people.