September 14, 2006 at 4:04 pm

At one point I was tested to see if POEMS was a possibility. POEMS stands for Polyneuropathy, Organomegaly, Endocrinopathy, Monoclonal gammopathy, Skin changes. It is an exceedingly rare systemic disorder, a malignant-like condition as I understand, of which CIDP-like symptoms are one of many. Other features could be enlarged organs, hormone problems, etc. Another common feature of POEMS are bone lesions, similar to Multiple Myeloma. Evidently, it has a poor outlook, relative to recovery. Thankfully, it was ruled out for me.