June 13, 2007 at 7:06 pm

Hello Becca,
I wish I had an answer for you, but the only thing I know to say is that you have to be your own advocate when you know there’s something wrong and the doctor’s tell you there isn’t. I went through about eight doctors because some of them told me my CIDP was hopeless. If you have to, I would go thrrough as many doctors as necessary until you find one who can tell you what is wrong, but I know doing that has to depend on your insurance coverage.

I think we would all say to you that you are welcome to stay here with us and talk to us as long as you need us.