Peripheral neuropathy…

Anonymous
November 24, 2007 at 11:52 pm

Actually, I am not surprised at all by this dx, as there are literally hundreds of causes for peripheral neuropathy. Those of us with CIDP always tend to think someone has our illness when the symptoms present in the same manner. But having said that, it does sound as if she could have CIDP, because of the abnormal EMG. But at Mayo they used a sural nerve biopsy, an LP & two sets of EMGs before they told me I had CIDP. Then I underwent a mountain of tests to rule out anything else that could be going on, such as leukemia or lymphoma. I had a nerve biopsy, a spinal nerve root biopsy, a bone marrow biopsy, CT Scans, 4 complete sets of MRIs, X-rays, EMGs, NCSs, etc. Every day it was some new test! But I did have a very bad case of CIDP…

In the case of your aunt, because of her age & where she is living, they might not want to put her through all of that. But she should at least be given neurontin if she has nerve pain & maybe IVIG could be tried? I don’t know her circumstances all that well…
Pam