PE 1st IVIG 2nd test case

August 29, 2008 at 4:19 pm


I too reasoned that PE to remove bad antibodies followed by treatments to impact the immune system is the way to go (at least for me) so my neurologist and I chose that course.

So I am a test case for your theory of PE before IVIG and will try to log my response in the B-12 deficiency thread.

I had 5 PE’s in 7 days (August 7, 8, 11, 12, 13). 9/5 I return to the neurologist; the next step in the plan is for a “booster” PE followed by IVIG. I began seeing improvements (motor and sensory) within 7 days of the last PE.

***** Anyone reading this thread please realize what works/doesn’t work for one person may not hold true for others (caveat emptor) *****

CIDP symptoms began 3/08
Incomplete DX (B-12 deficiency) 5/08
Positive CIDP DX 8/08
Treatment begins 8/7/08