Patricia Ann
Just before I got my first attack of CIDP I had been using insecticide in my kitchen. Then I had a tetanus (DPT actually) shot for snipping my hand with the scissors (clumsyness not on purpose.) Within a couple of day after the snipping problem I came up with numbness (not complete) on my hands, foot tops. It gradually grew to be almost all over my body. Then it faded somewhat. Then, a year later I got punctured by a rusty nail. The numbness came back with new vigor. I think the cause was a combination of the insecticide and the shot. My final diagnosis was idiopathic CIDP.
After chemo and radiation CIDP swooped upon me again. Harder. Then along with my recent stroke the CIDP has renewed vigor and I am swimming against the current. I have to be carfull when I wash my hair because my scalp does not notify me if the water is cold or hot. But now I have muscle weakness, not just numbness. Last fall I had to sign a statement that I hav never been suspected to have even suspected GBS. I didn’t know about that then.
Yes, my numbess and my streng are much worse. I’ll just
skip the shot and not hang out in large groups of people
My best.
Patricia Ann
Just before I got my first attack of CIDP I had been using ia new insecticide in my kitchen. Then I had a tetanus (DPT actually) shot for snipping my hand with the scissors (clumsyness not on purpose.) Within a couple of day after the snipping problem I came up with numbness (not complete) on my hands, foot tops. It gradually grew to be almost all over my body. Then it faded somewhat. Then, a year later I got punctured by a rusty nail. The numbness came back with new vigor. I think the cause was a combination of the insecticide and the shot. My final diagnosis was idiopathic CIDP.
After chemo and radiation CIDP swooped upon me again. Harder. Then along with my recent stroke the CIDP has renewed vigor and I am swimming against the current. I have to be carfull when I wash my hair because my scalp does not notify me if the water is cold or hot. But now I have muscle weakness, not just numbness. Last fall I had to sign a statement that I hav never been suspected to have even suspected GBS. I didn’t know about that then.
Yes, my numbess and my strength are much worse. I’ll just skip the shot and not hang out with large groups of people
My best.
Patricia Ann
Thank you both for your kind comments. I got my Dx in 1987, 2 years after my first experiance. I was boiling some quart bottles of fruit. Boiling. So…I dipped my hand into the boiling water, pulled one out and looked at my hand. Bad Idea, I thought. So I put it back, dipping my hand again. No pain. Just amazement that I could do that.
Doctor sent me to a neurologist. He did a very complete battery of tests. Dx: sensory neuropathy. Later, my doctor suggested I get a second opinion: periferal neuropathy. Sent me to Scripps in San Diego. Dx: acquired idiopathic inflammatory neuropathy. Then I had lymphoma, together with surgery, chemo, radiation. Cured.
So about 5 years ago, a physiatrist dx FMS, CPS, Migraine, GERD IBS RLS. Then I moved back to California, and dx was CIPD. And that I didn’t present with any set of symptoms any Dr. could recognize.
Then I had my stroke 6 months ago so added more stuff.
I was getting better but one morning I woke up and could hardly move. My home PT came and since I couldn’t stand with my walker, step, she called an ambulance and I sped off to the hospital. After 3 or 4 hours I was better (for me)
and I was sent home in a taxi.
Everyone here is telling me to get more exercize. During all that previous stuff, I was caring for my husband with Alzheimers. I have been completely worn out.
With great thanks.
Patricia