Past tense…

Kelley,
I know I moved past it right away, never have been one to hold grudges! I continue to look for new people who really need help & answers; always recommend IVIG as a first treatment for CIDP. I suffered way too many side effects from being on solumedrol for 21 months to advice it. I still think that cytoxan shold be reserved for only those refractory to IVIG, wished IVIG woud have worked for me.

Back in 2002 when I first joined there were many parents who posted on the child’s forum, I wonder what happened? I know there are a lot of CIDP people posting on the FB site, too bad we all can’t stay in one place. I do think that in the past some negativity on this site turned people off to it. Where is Dawn, she used to help out many people with her knowledge? Also, With Hope was so intelligent? Have these people just moved on with their lives? Or did it have to do with those negative posts? It’s such a shame, because at my worst this site kept me going, I felt like everyone who belonged were like friends & family to me. Hope it can be that way again…